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The main IP address: 65.39.205.54,Your server United States,New York City ISP:Squarespace TLD:org CountryCode:US
The description :the magicwater project is a group of parents with a mission of saving the lives of our kids diagnosed with neuroblastoma and medulloblastoma....
This report updates in 25-Aug-2018
Created Date: | 2007-03-29 |
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Longitude: | -74.012184143066 |
Country: | United States (US) |
City: | New York City |
Region: | New York |
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about us home our purpose our grants — blog kids and cancer childhood cancer facts media & photojournalism action you can take contact us donate why the name? how do you explain chemotherapy to an 18-month old girl? one girl’s parents called it “magic water” — magic water that would make the pain in her legs go away. they promised her the pain would go away and it worked for 3 years. when the magic water stopped working and their little girl asked if the next round of magic water would help the pain go away, the parents could only reply that they hoped it would. we are dedicated to fulfilling that wish of finding a magic water that will make all the pains of cancer go away. search medicine that works posted on sun, january 10, 2010 at 05:38pm by neil hutchison | 19 comments | 162 references we have been at the cancer business for 5 years this month and it took a long time for me to understand the difference between classic oncology (allopathic) medicine and complementary/alternative medicine. well, there really is no difference because in both categories there is medicine “that works” and medicine that “does not work”. www.ldnscience.org is a newly-launched site that brings attention to 2 non-mainstream medications “that work”. go to this site and enjoy a well-researched, nicely-presented site that may help you or others with cancer, ms, and other diseases. you decide! posted on mon, january 4, 2010 at 06:05am by neil hutchison | 20 comments | 73 references please go to this link and support a personalized medicine trial for neuroblastoma (option a). lillie’s friends, a foundation devoted to neuroblastoma research in honor of a little girl, lillie boyte, has dedicated $75,000 to the winner of a contest between (3) various research projects. we like the trial that is dedicated to looking at how one child’s tumor differs from another. personalized medicine is a reality for some adult cancers - let’s help make it a reality for neuroblastoma. a quiet sunday and 2 helpful links posted on sun, january 3, 2010 at 10:46am by neil hutchison | 18 comments | 32 references sam update: sam’s left arm (just below the shoulder) and left tibia (just below the knee) started hurting yesterday. this is consistent with bone mets from his most recent november mibg scan so it’s probably disease in the arm but i am withholding hope that the leg pain is from playing soccer. it hurts when we press on his leg and that’s usually not neuroblastoma in my experience with sam. i have started sam back on germanium (an upcoming case study i’ll post) and it’s pretty phenomenal - his energy is much increased and i can always measure that by the resounding sound of his devilish laugh as he torments his two younger brothers. we did small doses of prednisone and hydrocodone last night at midnight which helped to resolve the pain. as of sunday, sam has not required any more pain medications which is a good sign and hopefully an indication that the germanium is working. tomorrow is a work day for sam - 7:30am at rady children’s hospital of san diego for a blood check and potentially chemo (vinblastine and rituxan). helpful links: the two links have been very helpful to me so if you are new to cancer, i would bookmark them: www.acor.org - communities of cancer patients/parents www.cancerdecisions.com - ralph moss’ weekly blog which always has interesting insight have a wonderful sunday. neil another interesting case study posted on sat, january 2, 2010 at 01:44pm by neil hutchison | 28 comments | 56 references sam update: sam is doing well – we played soccer with a bunch of other kids yesterday and it was great to see him get the exercise. he has had no pain since 12/22 so for that we are very thankful. he wants to play spring baseball and so today we’ll make sure we go out and work on his swing – his strength and speed need a bit of work but i always tell him we can do anything as long as we work hard. saturday (today), we played miniature golf and he had (2) aces so we’re very proud to see that. despite all of the chemotherapy, surgery, and radiation he has seen, he still has phenomenal eye-hand coordination. my wife updates his personal website at www.teamsam.com and includes stories of my other children, andrew and charlie. today’s thoughts: one of the things i would like to do is to build a library of compelling case studies and preclinical publications that show ‘big results” – sustained responses in mice and men. i don’t differentiate between chemotherapy and alternative/complementary medicine. i have been a snob in the past eschewing chemotherapy for alternative/complementary medicine while at other times reversing course. now i know that the only questions are “does it work and how toxic is the treatment?” with that stated, i would like to post a recently published paper using (2) very non-toxic agents, alpha-lipoic acid (ala) and low-dose naltrexone (ldn), to help pancreatic cancer patients. pancreatic cancer is a very bad diagnosis and has claimed the lives of patrick swayze (dirty dancing the movie), chuck daly (head coach of the two-time nba champion detroit pistons and the head coach of the 1992 olympic dream team featuring michael jordan, charles barkley, magic johnson and larry bird), and randy pausch, the carnegie mellon computer science professor, mike deaver (deputy chief of staff in ronald reagan’s presidency), andrew mckelvey (billionaire founder of monster and tmp), and gene upshaw (pro football hall of fame). naltrexone is used to help wean alcoholics away from drinking; normal dose is 50mg day and the dose used in the anti-cancer protocol is 10 to 20x less. i have learned that dosing is huge – the same drug will have very different effects depending upon the dose. what is interesting is that ldn has been researched in neuroblastoma way back in the mid ‘80s by dr. ian zagon, phd from penn state university. there have been no clinical trials using ldn or a complementary medicine, opioid growth factor, in neuroblastoma to-date. a summary of the initial ala/ldn protocol used to treat a pancreatic cancer patient is below along with a link to the most recent publication detailing the case reports in (3) additional patients. i would love to be aware of more case studies so please let me know of others so i can build an online library that can be readily accessible to parents,patients, and doctors. thank you for stopping by… ********************************************************************* long-term survival with alpha-lipoic acid (intravenous), multiple antioxidants, and low-dose naltrexone a recent case report describes the long-term survival (>3 years) of a 46-year-old man who was diagnosed with a very aggressive cancer of the pancreas (adenocarcinoma) which had spread to the liver (berkson bm et al 2006). the patient had a 3.9 x 3.9 cm tumor in the head of the pancreas and 4 tumors in the liver, one of which was 5 to 6 cm in diameter. he was told there was not much that could be done for him, yet he was treated with one round of a typical chemotherapy regimen (gemzar® (gemcitabine) and paraplatin® (carboplatin)), which caused reduced blood cell counts but no tumor regression. he received a second opinion that any further treatment would be in vain, so he opted for an integrative medical approach (via the integrative medical center of new mexico). for his non-cancer medical conditions he was given several antacids (prevacid® 30 mg, rolaids®), antibiotics (primsol™/gantanol®), antiulcer agents (mylanta®, pepto-bismol®), and the anti-anxiety drug, xanax®, and then he started an integrative therapy program, the ala-ldn (intravenous alpha-lipoic acid- low-dose naltrexone) protocol. the ala-ldn protocol comprised alpha-lipoic acid (ala) (300 to 600 mg intravenously twice weekly), low-dose naltrexone (vivitrol™)(3 to 4.5 mg at bedtime), and orally, ala (300 mg twice daily), selenium (200 micrograms twice daily), silymarin (300 mg four times daily), and vitamin b co
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/4/you-decide.html#references
http://www.magicwater.org/contact-us/
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/4/you-decide.html#comments
http://www.magicwater.org/kids-and-cancer/
http://www.magicwater.org/news/
http://www.magicwater.org/facts/
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/2/another-interesting-case-study.html
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/10/medicine-that-works.html
http://www.magicwater.org/donate/
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/10/medicine-that-works.html#comments
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/1/happy-new-years-and-a-drug-called-nitisinone.html#references
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/3/a-quiet-sunday-and-2-helpful-links.html#references
http://www.magicwater.org/our-grants/
http://www.magicwater.org/our-thoughts-on-cancer/2010/1/10/medicine-that-works.html#references
http://www.magicwater.org/our-purpose/
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Domain Name: MAGICWATER.ORG
Registry Domain ID: D142513627-LROR
Registrar WHOIS Server: whois.godaddy.com
Registrar URL: http://www.whois.godaddy.com
Updated Date: 2018-03-30T11:23:47Z
Creation Date: 2007-03-29T21:21:53Z
Registry Expiry Date: 2019-03-29T21:21:53Z
Registrar Registration Expiration Date:
Registrar: GoDaddy.com, LLC
Registrar IANA ID: 146
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.4806242505
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Registrant Organization: Domains By Proxy, LLC
Registrant State/Province: Arizona
Registrant Country: US
Name Server: NS39.DOMAINCONTROL.COM
Name Server: NS40.DOMAINCONTROL.COM
DNSSEC: unsigned
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REFERRER http://www.pir.org/
REGISTRAR Public Interest Registry
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OWNER
ORGANIZATION Domains By Proxy, LLC
ADDRESS
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COUNTRY US
REGISTERED yes
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